PROJECT 514 415
Artist: Clare Ellen Gregory
Creating impactful change for the endometriosis community
We feel incredibly grateful to have collaborated with and shared the stories of individuals living with endometriosis through PROJECT 514415. Over two years, we gathered poetry, short stories, letters, and artwork directly from the community. It has been a true privilege to be entrusted with these powerful and meaningful works that vividly convey the impact of endometriosis.
Project 514 415: Accomplishments
We have worked on a range of projects dedicated to supporting the endometriosis community and raising awareness about endometriosis.
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Awareness Campaign
Download free posters and postcards illustrated by the endometriosis community curated by our founder to raise awareness about the lived experiences of endometriosis and dispel misconceptions. These posters were featured at the 2024 AGCES Endomarch online conference.
The Lived Experience of Endometriosis Survey Results
Our founder designed a survey to accurately reflect the lived experiences of people living with endometriosis, to address the limitations of existing research, and societal beliefs of endometriosis, which was published in our 1-IN-10 Poetry Book. Chelsea later presented this data to the 2025 AGCES conferences in Atlanta, USA.
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Accommodations Research
Chelsea spearheaded our research project on accommodations for endometriosis, which was published in the Project 514 415 collection and analyzed by our founder, Verity. Following this, Chelsea produced a comprehensive research report.
This research will be presented at AGCES 2026 in Las Vegas.
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Art Gala
We collaborated with the Autoimmune Alliance to co-host an art gala in NYC. At the event, we showcased our Project 514, featuring an artist exhibition sharing the lived experiences of endometriosis, while also supporting the Autoimmune Alliance in their efforts to raise funds for their charity.
Gallery Exhibitions
We have organized gallery exhibitions that highlight the lived experiences individuals with endometriosis. Currently, we have a selection of artists participating in a touring gallery across the USA, curated by Chelsea.
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AGCES
Chelsea has represented the SATIREV Project 514 415 at AGCES on three occasions:
1. In 2024, she showcased Project 514 415 and shared our awareness campaign online.
2. In 2025, she presented an academic poster highlighting our lived experiences with endometriosis research in Atlanta. .
3. In 2026, she presented two academic research posters based on our accommodation survey in Las Vegas.
1-in-10 poetry book.
Our 1-in-10, a poetry book created and illustrated by the endometriosis community. Featuring 64 contributors, 67 poems, 28 artworks, and voices from 166 survey participants, this book offers a powerful insight into lived experiences.
Project 514 415:
The Collection
Project 514 415, exploring the lived experiences ofometriosis through art and literature, is available on Amazon. It showcases 145 individuals impacted by endometriosis experiences.
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Community Galleries
We have collaborated with public venues like the Colorado State Capitol in the USA to establish awareness galleries within the community. This initiative encourages and enables local residents to engage with and experience the artworks created by our Project 514 415 artists.
All USA Community Galleries are curated by Chelsea, please sign up to our news letter for up to date gallery venue and dates,
AS FEATURED BY:
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About Endometriosis
What is Endometriosis
Endometriosis is a medical condition in which tissue similar to the lining of the uterus (endometrium) but has been clinical proven not to be the endometrium is found elsewhere in the body. These cells can grow on the surface or infiltrate deep inside organs, nerves, muscles, ligaments etc. Endometriosis has been found on every single organ in the body (including the brain, heart, lungs etc), and can bind organs together. Endometriosis has been listed as one of the top 10 most painful medical conditions. Despite this there is no cure for endometriosis, only management strategies and surgery to reduce / limit the effects of endometriosis.
Effects & Complications of Endometriosis
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Loss of organs
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Stoma
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Urostomy
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Chronic pain
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Fatigue
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Medical trauma
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Nerve damage
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Nausea / sickness
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Shortness of breath
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Chest pain / tightness
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Infertility
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Ovarian cysts (which can explode)
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Bloating (Endo belly)
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Burning up
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Frozen pelvis
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Fused organs
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Misdiagnosis
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Medical anxiety
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UTIs
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Depression / low mood
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Blood in stools
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Heavy bleeding
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Painful sex
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Bleeding during / after sex
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Painful ovulation & mensuration
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Pain opening bowels
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Migraines
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Black outs
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Sciatica / nerve pain
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Acute flare up of pain
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Adhesions
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Pneumothorax
Misconceptions of Endometriosis
Endometriosis has many misconceptions both within the medical profession and society which not only delays vital treatment, but can result in outdated and / or inappropriate medical treatment and advice, further prolonging the suffering of those with endometriosis. The main misconceptions are:
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Endometriosis is just a painful period that can cause infertility.
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Endometriosis only affects menstruating women.
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The pill, coil, or pregnancy will reduce / slow down / reverse /stop the growth of endometriosis.
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A Hysterectomy or menopause will cure endometriosis.
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Endometriosis is only found in the womb & ovaries (reproductive organs).
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It is too rare for endometriosis to be found outside of the pelvic cavity.
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Endometriosis only effects women in their 30s who have not had children.
It is vital that these misconceptions are abolished, and that everyone has a factual baseline knowledge of endometriosis.
Artist: Lea Ervin
Project 514 415: The Lived Experiences of Endometriosis
Lets stop the silence together!
Our collaborative art and literature project, has given a voice to the 1-in-10 people living with endometriosis, in which 170+ people shared their lived experiences with endometriosis through art and literature pieces with the aim of:
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Raising awareness for both symptoms & the lived experiences of endometriosis.
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Debunk misconceptions.
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Highlighting the urgent need for updated medical research and upskilling of medical professionals.
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Reducing the ‘average’ diagnosis period down from 8 years (for many this can be 20-30 years until diagnosis).
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Create a safe space for people with endometriosis to be heard, seen, and validated.
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Creating impactful changes for the next generation.
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Increase knowledge and provide education to change societal bias regarding, invisible illnesses, women’s health & wellbeing, and menstrual health.
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Increase empathy for the endometriosis community and have an awareness on the impact of sufferers’ families, careers, friendships, physical and mental well-being, futures etc.
Continuing the Support.
Throughout Project 514 415, we collaborated with remarkable organisations committed to the endometriosis community. This project also united advocates from around the globe, all dedicated to enhancing and sharing the lived experiences of those affected by endometriosis. Today, we take great pride in seeing these advocates establish their own foundations and continue to provide support and advocacy for the endometriosis community, who supported and help build Project 514 415.
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